At MobilityWorks, we are dedicated to supporting organizations that empower individuals with mobility challenges. One organization that inspires us is Walking Strong, a nonprofit committed to improving the lives of those affected by Duchenne muscular dystrophy (DMD). With Rare Disease Day taking place on February 28, we want to highlight the incredible work Walking Strong does and how their mission is raising awareness for rare diseases.
What is Walking Strong?
Founded by a family personally affected by DMD, Walking Strong is on a mission to fund research, provide resources and offer hope to individuals and families impacted by this progressive disease. Duchenne muscular dystrophy is a rare genetic disorder that primarily affects boys, leading to loss of muscle function and independence over time. With no cure currently available, the work of Walking Strong is critical in supporting research for treatments and, ultimately, a cure.
Through fundraising events, grants and community engagement, Walking Strong provides financial assistance to families for essential equipment, accessible home modifications and mobility solutions—including wheelchair accessible vehicles. Their dedication to improving quality of life closely aligns with our own mission to provide those with limited mobility the independence, mobility and personal freedom they desire.
The Importance of Rare Disease Day
Rare Disease Day is observed annually on February 28 and is meant to shine a light on the challenges faced by those living with rare diseases, including DMD. The initiative aims to educate the public and encourage research advancements. Walking Strong plays an important role in this effort by advocating for the DMD community, sharing personal stories and promoting initiatives that can lead to meaningful change.
At MobilityWorks, we recognize that accessible mobility solutions are essential for individuals with Duchenne and other rare diseases to maintain their independence and live life to the fullest. By supporting organizations like Walking Strong, we continue our commitment to making mobility possible for everyone.
How You Can Get Involved
There are many ways to support the mission of Walking Strong and Rare Disease Day:
- Donate: Contributions to Walking Strong help fund groundbreaking research and provide resources for families in need.
- Spread Awareness: Use social media to share facts about DMD and the importance of Rare Disease Day.
- Attend an Event: Walking Strong hosts fundraising and awareness events throughout the year.
As we recognize Rare Disease Day, we celebrate the resilience of those living with Duchenne muscular dystrophy and reaffirm our commitment to supporting accessibility and independence. To learn more about Walking Strong and how you can help, visit Walking Strong’s website.
Together, we can drive change and provide everyone, regardless of their diagnosis, with the opportunity to live life on their own terms.
The post Rare Disease Day Spotlight: How ‘Walking Strong’ Empowers the DMD Community appeared first on MobilityWorks.
